Sickle Cell Disease
Research Program
Join a compensated Johns Hopkins University research program helping individuals with Sickle Cell Disease
Must Live Within 1 Hour Drive of Baltimore, MD
Compensation
Provided
In Stable
Health
Have Sickle Cell Disease
18 Years and Older
Fast Facts
About this research study:
Johns Hopkins researchers are conducting a research study that examines whether changes in sleep would alter feelings of pain in adults with Sickle Cell Disease.
Many adults living with Sickle Cell Disease (SCD) report that they experience chronic pain that contribute to disability and a need for constant assistance from medical professionals. As many as 70% of adults with SCD experience various sleep disturbances. Pain and sleep are interrelated, such that pain disturbs sleep and disturbed sleep amplifies pain and increases the risk of developing chronic pain. This study is looking for people with SCD that have a variety of symptoms, including sleep and pain.

Our research program will discover the effects of sleep on pain sensitivity. Since treatment options are limited for individuals living with SCD, a new treatment of improving sleep may provide an effective, non-pharmaceutical approach to improving multiple pain-related outcomes.
Additional Information
Why is this study being done?
Understanding the contribution of sleep to pain sensitivity will enhance our knowledge of pain in Sickle Cell Disease as well as other chronically painful conditions. With limited treatment options for individuals living with Sickle Cell Disease, a new treatment of improving your sleep may provide an effective, non-pharmaceutical approach to improving your chronic pain.
Is this study for me?
You may qualify for this study if you meet the following criteria.

Key Criteria:
  • Have Sickle Cell Disease
  • Must live within 1 hour drive of Baltimore, MD
  • Are medically stable
  • 18 years and older
What will happen if I participate in the study?
If you qualify and agree to participate in this research study, you would conduct the following activities:
  • 1 phone screening session (remote)
  • 1+ in-person visit(s) lasting 2-5 hours (1-2 brain imaging sessions, sensory testing, Interventions for sleep problems)
  • Some participants may also complete 2 follow-ups that will be done online (remote)
Will I be paid for being in this research study?
You may earn up to $1,138 for completing all study-related visits.
Will it cost me anything to participate in this study?
There is no cost for you to participate in our research program.